It was a quiet weekend

We had a fabulous time away. Thankfully, Mariella was nice and clear the whole time. My parents said she didn't cough at all...ABBY, however says she coughed a little, but not as much as a few days ago. I'm sure my parents didn't want me to worry. Of course, I worried while we were away...but we had no cell service on the boat, so we couldn't call, even if we wanted to. My parents had a number to call if they needed to get ahold of us...so I wasn't too worried about it. They were told, "one of the girls falls off the swing and breaks their arm...don't call. Mariella crashes and is in PICU on a vent...call...even if we can't get home...I need to know that."

Now that we're home...it's been fairly quiet. Mariella's tummy is bugging her, but she's either going to throw up, or she won't. She would feel better if she DID...but I can understand that she doesn't want to. I just hope the "gag cough" that she is doing doesn't set off a flare. Sometimes, the cough sets off a flare. I'm dosing her with single hits of Xop every 8 hours or so, just so her lungs don't start screaming.

The seasons are definitely changing. We always expect a good flare this time of year...I'm hoping that it doesn't happen, but we have to be prepared. She has a pulmo appointment coming up in a couple of weeks too, so we'll see how her lungs are really doing. For now, I'm enjoying the relative quiet.